You can't depend on your eyes when your imagination is out of focus.
~ Mark Twain

March 20, 2014

13 weeks in frame...

13 weeks of our babies in pictures - thank goodness for cell phones!

Nicknames that have evolved
Sebastian - Bash, Basher, Munchkin, Littlest Jones
Keegan - Keegs, Keegers, Keegalicious (middle of the night, but it sticks), Pumpkin, Littler Jones
Weston - Little Jones, Buddy
BIRTHDAY!!! 12/12/13 (6 weeks early)
living in the NICU, hooked up to: IV Antibiotics, feeding tubes, "room air" oxygen push, and in incubators to regulate their temperatures. Sebastian ends up under the Bilirubin light for a few days to fight Jaundice.
WEEK 1 - Major Progress!
Antibiotics ceased, Oxygen tubes removed, no more bili lights, and we're kangaroo holding - which is skin-to-skin holding. Keegan snuggles in, while Sebastian licks me until he falls asleep.
12/19/13
Both boys only have feeding tubes, though they are breast & bottle feeding when they have the energy. They have also been moved to open air cribs!
Week 2
Noticing the world around them, working on weight gain and consistency, and wearing clothes!!! Keegan meets Weston through a glass window and slightly open door first, and then on Christmas Eve Weston and our nieces meet both babies through the glass window. My Dad and brother hold them for the first time.
12/26/13 - My Birthday!
Still working on growing and eating, maintaining body temp, and not having any "spells" - once they reach these goals, they can go home!
1/4/14
Sebastian came home 12/31/13, and Keegan joined him on 1/4/14. finally, our family under 1 roof, and no need to leave the house in awful weather to venture to the NICU.
1/12/14
They are thriving! Both are gaining weight, but still not sleeping for long.
2 Months Old!!! 2/12/14
Photo shoot courtesy of Tylenol and 8 wk vaccinations.
2/14/14
Happy Valentine's Day from Aunt Shannon and soon-to-be-Uncle Bill.
Weston is in love with his baby brothers.
2/20/14 - Time has flown by and these boys have grown by leaps and bounds. They've doubled their body weights and added 2+ inches to their lengths. They're smiling and amazing. Keegan developed a Hemangioma - a birthmark that appears as a rubbery, bright red nodule of extra blood vessels in the skin. It grows for the first year of life and then fades until there is little to no trace of it. It really came in handy for telling them apart for the first few weeks at home. :)
2/20/14 - Synagis Vaccinations #2
Because they were preemies, our boys had to get what is more commonly known as RSV vaccinations. They got mailed to us directly and a home health nurse (Laura) would come out and administer them. So, here they are waiting for their shots just after being weighed. I swear Sebastian knows exactly what is going on.
Whenever these boys are too fussy, we strip them. Just like their big brother, being naked calms them down. the hate being too warm. Weston will take any excuse to remove his clothes.
We had pictures taken at the hospital on 12/31/13, you know, the ones where they visit in the first days after birth? Or in our case, almost 3 weeks after birth. We had to wait until they were both healthy enough to leave their NICU room. I had this print made at Shutterfly.
Naked Baby Time! Taking advantage of an outfit change and a 60 degree day.
For the baby shower thrown by my sister, guests were encouraged to design onesies. Our nieces made 2 of my faves - Sebastian is wearing Zoey and Keegan is wearing Paisley.
Keegan's hand in mine. I think baby hands just might be my favorite body part. And his are so perfect! And huge for his size!

3/12/14 - Our babes are 3 months old today! they offer smiles and coos, they love to be held and cuddled. Both are doing really well.
Our babies caught the cold bug that Weston and I've had. Keegan had it the worst at first with a bad cough. Sebastian's popped up again this past weekend, and mine came back with a vengeance. These Rock-N-Sleep things from Fisher Price have been a lifesaver. I wish I had one with Weston.
Weston had Dr. Seuss week at school. Monday was Red Fish, Blue Fish day. So we made him a shirt using his hand prints a la Pinterest. He wanted his brothers to match, and they were quickly growing out of these.
3/8/14 - almost 3 Months!
We had their 3 month pictures taken at Target, and then had family pictures taken as well. (see the left sidebars.)
We baptized our babies at St. Paul Lutheran on 3/15/14. I forgot to charge the battery on my camera, so this is what I have until I collect from everyone else. It was another hard time without Mom, but Dad put on a brave face and really enjoyed his grandsons. We had a great evening with both sides of the family and our friends.
3/16/14 - Sunday brunch with Scott's family. Sebastian is not thrilled about the layers in his outfit, how his cold is progressing, or the fact that I am posing him without the bottle in his mouth. He got over it, and never really did cry.
 This is the background on my phone's lock screen. It's basically a week in pictures. Papa and Keegan, Sebastian's selfie that he messaged to my friend Tuesday morning. Keegan's selfie that he instagrammed so he wouldn't be forgotten (As if!!!), and my Jones' Boys in their St. Patrick's gear. The Itty Bits are actually wearing Weston's hand-me-down tees from 2009. No idea how tight they must have fit him!

This is 3/21/14 - finally wearing the Owl hats I had made for them - and of course it's almost spring. :)

March 19, 2014

Since I've been gone...

My Mom died over 5 months ago, October 18, 2013 .
It was not beautiful, but it was mercifully fast. Mom didn't suffer as much as we did, and I thank everything for that. It was a little supernatural in that I heard something hit the floor upstairs near her bed right as she passed. We looked everywhere, nothing had fallen. I think it was Mom. It's all it could have been, at least in my head.
I wrote her obituary, at her request, and it's some of the best writing that I've ever done, or so I've been told. I'm glad that I could honor her that way.
I'm not over it. I will never be over it. I miss her every day, every night, whenever I look at my children. And yes, I said Children.

My boys were born Dec.12th. They were 6 weeks early from their due date and 4 weeks early from our scheduled C-section.

Everything was fine and normal on Dec. 11th. I had my regular apt with the Perinatal Center - ultrasound and non-stress test came back great. Babies had turned sideways, but we all thought that was good- they were getting ready for the final stretch. As I was leaving, my brakes went out on our car. Everything ended up fine- I wasn't hurt, and I managed to make it to a gas station on one of Des Moines' busiest roads. he car was towed, and my sister picked me up. My aunt was in town watching Weston before and after school since our daycare was closed, because they had their baby. We went to dinner that night all together, and I still felt fine. No problem.
I woke up at 5am on Thursday, December 12th, having to go to the bathroom. I got up and felt like I wet myself. 15 minutes later, I woke up and realized that people do not go to the bathroom for 15 minutes. So I called the hospital nurse and confirmed that my water had broke. So we went off to the hospital in a great rush - no packing, Weston wouldn't even wake up. We were just so lucky that my aunt wasn't supposed to leave until 9am. She took care of Weston and got him off to school, and then joined us at the hospital. I was so ridiculously calm. Scott too. There was no freaking out or anything. I still can't believe how calm and surreal it all was. The nurses actually told us that Scott and I were the cutest couple, one of their favorites. I didn't feel like we were being particularly nice to each other, but hey, we'll always take a compliment.
It took 5 hours for the hospital to get everything in order (I totally had time to pack!!!) It was smooth and so much different from Weston's emergency C-section. I actually had contractions this time. But they never got bad enough to need medication, but they were almost to that point. :)
But, it was nice to talk to the doctors and nurses, to have time to comprehend everything.
Keegan Nathaniel was born at 11:31am, 5lbs 4oz, and 19" long. He was doing well enough for me to see him up close.
Sebastian Miller was born at 11:34am (though it felt so much longer than 3 minutes in between since they had to pull him out from under my ribcage). He was 4lbs, 12 oz and 17-1/4" long. He wasn't doing as well, so I saw him through the incubator.
The babies were immediately transported to the NICU, while I was taken to surgical recovery. I had an amazing experience. Everything was calm, our babies cried when they were born, and I got to see them before they went upstairs. The doctors and nurses were amazing, very caring and I didn't feel like I was on an assembly line. I really wish Mercy would send me a survey or something. I was able to see my babies in their NICU room within 3 hours and I was able to hold Keegan by 9pm that evening.
I was in the hospital for 4 days, and it was weird being in the maternity ward without babies. It was also lonely, especially at night. I was up and walking by the next day. I only missed 2 days of being in the NICU with my boys in over 3 weeks, and it was weather related. Our winter weather has been awful since these boys were born. It's like they brought ice and snow with them - probably so they could snuggle more.
Our boys were in the NICU for about 3 weeks. It felt so much longer. The first few days were the longest, and most frightening, but looking back, we really had it easy. Our boys were rock stars. They were born at a great size (I think they would have been 8-9 pounds had they gone to their scheduled delivery date), and were in pretty good health. They needed help breathing, so they were on Room-Air Oxygen, what that means is that room air is pushed into their lungs to help them breath regularly. It's a big step down from pure Oxygen. They were also on antibiotics (to cover the bases), feeding tubes, had their blood sugars checked regularly, 4 different heart/lung monitors, and in incubation boxes (I'm sure that there is a better name, but it's a plastic box.) Within a week, they had made vast improvements. I thought for sure that we'd have them home for Christmas. Everyone said I was wrong, but I looked at it as being optimistic. The boys had to meet four requirements before their release:
1. Maintain their body temp
2. Continually gain weight
3. Eat by mouth (breast or bottle) consistently for 48 hours - since they were early and smaller, eating completely tires them out, so they occasionally had to be fed through the tube so they would have enough energy to bottle feed the next time. The more the eat, the more they grow, the more tired they get trying to get there. It's a vicious cycle.
4. No Spells - what are spells? Spells are cycles where the baby's heart rate & breathing drop very low for longer than 15 seconds before their body recovers, either on their own or with assistance. It's one of the scariest things I've ever seen.
So, as I said, I was optimistic for a Christmas homecoming. The boys were rocking it, Sebastian was finally overcoming his spells and was really picking up the eating. On 12/23 the boys were circumcised. Sebastian sailed through and kept moving forward. Keegan just couldn't get over the stress of the circumcision and/or the overall pain. He started having set backs - spells, not eating, maintaining, but not gaining weight. It was a long 12 days with him.
Sebastian was released from the NICU on December 31, 2013. It was the hardest thing leaving Keegan behind. But it was the right choice and place for him. If he had been released and had to be readmitted, he would have gone to the PICU (Peds) instead of the NICU - and there are so many more infections in the PICU. Weston and Sebastian got to know one another, and I really think it helped Weston to only have one baby to deal with. Once on his own, Keegan really started to flourish. We were back on the countdown to release.
Sebastian came home the afternoon of January 4, 2014. It was crazy saying good bye to the NICU and signing out for the last time. We plan on going back and taking some of the boys clothes... not all NICU babies are tiny. :)
Its been an amazing time. I was able to stay home with them for an additional 7 weeks, so I was gone from work for 10 weeks. I had help for 8 of the 10 weeks. My aunt came of from Cedar Rapids for 2-4 days 8 of the 10 weeks. She was a godsend. My sister and her fiance also come by to hold and cuddle and help out as needed, and Weston has been a big help too. Well, as big of a help as a 5 year old wants to be. The boys are smiling and cooing and starting to laugh in response to tickling. All is good so far. :) My Mom would just love these boys. They each like to be held and cuddled and then they want to be put down for time on end - she would have loved that.